Navigating life with dysphagia, or difficulty swallowing, can bring about many questions and sometimes misconceptions. At Carewell, we believe in empowering caregivers and individuals with accurate information. That's why we're diving into some common myths about dysphagia, courtesy of our friends at Thick-It®, to bring clarity and understanding.
Dysphagia Myth #1: Because people with dysphagia consume modified diets, they don’t need to worry about oral hygiene.
FACT: Oral hygiene is important for everyone—especially people with swallowing disorders. Think about it: even with a modified diet, tiny food particles can still linger in the mouth. When these mix with saliva, they can unfortunately find their way into the airway, potentially leading to serious complications like pneumonia or other lung infections. Maintaining a consistent oral hygiene routine, including regular brushing and flossing (or using appropriate alternatives as recommended by a healthcare professional), is a crucial part of overall health and safety for individuals with dysphagia.
Dysphagia Myth #2: If a person has trouble with biting and chewing, they always need minced or puréed food.
FACT: Not exactly. While minced or puréed textures are sometimes necessary, the International Dysphagia Diet Standardisation Initiative (IDDSI) framework offers a broader range of options. Level 6, known as "Soft & Bite-Sized (SB6)," is actually one step above regular, easy-to-chew foods. These foods are specifically prepared to be bite-sized, soft, and tender, allowing some individuals with difficulty biting or managing larger pieces to still enjoy a more varied and appealing diet. Remember, always consult with a healthcare professional to determine the appropriate IDDSI level for an individual.
Dysphagia Myth #3: Watermelon is just like any other fruit for people with dysphagia.
FACT: Watermelon is actually a “mixed” or “dual consistency” food. These types of foods are more challenging for people with dysphagia to swallow because the person must be able to manage both the solid and liquid components of the food. Understanding these mixed consistencies is vital for safe swallowing.
Dysphagia Myth #4: Graham cracker crumbs are an example of a good garnish for foods of many IDDSI levels.
FACT: Like dry cakes, dry cookies, dry biscuits, and scones, graham cracker crumbs have a crumbly texture that can pose a choking risk. According to the IDDSI Framework, crumbly textures require good tongue control to combine the pieces with enough saliva to hold the food together to make it moist and safe to swallow. This highlights why seemingly small additions like graham cracker crumbs may not be suitable for all IDDSI levels.
Dysphagia Myth #5: If a dysphagia diet order lists an exception that’s unclear, just use your best judgement to modify foods and drinks.
FACT: Diet orders can be written on a case-by-case basis. But, any exceptions need to be clearly explained in simple statements to ensure that all caregivers understand how to prepare and serve food and drinks to their patients with dysphagia. Ambiguity can lead to unsafe food preparation and increase the risk of aspiration. Clear and concise instructions are paramount.
Dysphagia Myth #6: Because they have to avoid traditional holiday foods and drinks, people with dysphagia tend to feel isolated during the holidays.
FACT: No one should feel left-out of holiday feasts and fun! With a little creativity and planning, there are many ways caregivers can help people with dysphagia participate in holiday celebrations and enjoy a higher quality of life. Modified textures and consistencies can often be achieved for many traditional dishes, ensuring everyone can partake in the festivities. For helpful tips on making holiday mealtime more dysphagia-friendly, check out this article: https://thickit.com/blog/2020/11/11/making-holiday-mealtime-dysphagia-friendly/.
Understanding the realities of dysphagia is essential for providing safe and fulfilling care. By debunking these common myths, we can empower caregivers and individuals to navigate the challenges with greater confidence and knowledge.
Shop Thick-It Products